Your Help is Needed to SAVE ADAP (AIDS Drug Assistance Program)



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SAVE ADAP Alert  -  Last Shot

Final Decisions Being Made on ADAP Funding
Please call your Representative/Senators one last time to save ADAP!

September 29, 2003

Thank you again to everyone who has helped try to save ADAP this year by calling, writing, and meeting with your Members of Congress about this important issue! As you know from our last update, the Senate voted against the Schumer amendment, which would have provided a substantial increase for ADAP and other Ryan White CARE Act programs.   
[see below]

We are now at the end of the appropriations process for Fiscal Year 2004, and there is a final opportunity to encourage Congress to pass the highest possible increase for ADAP. Because the House of Representatives and the Senate proposed different increases for ADAP, a joint House/Senate “conference committee” will come together to work out differences.

The amounts passed by the Senate and House are extremely inadequate. The House has proposed a $39 million increase, while the Senate voted for a $25 million increase. Both amounts are far below the $215 million increase identified by AIDS treatment experts as needed to alleviate the current ADAP crisis.

Once again, Senator Charles Schumer (D-NY) is taking the lead on fighting for people with HIV by authoring a “Dear Colleague” to the conference committee. The letter asks for increases for the entire Ryan White CARE Act, including an additional $214.8 million increase for ADAP, at the levels included in his amendment.

This letter provides another chance for Senators to do the right thing and fight for funding needed for vital care and treatment programs for people with HIV/AIDS.

In addition, House Representatives need to be asked to convey their support for adequate ADAP funding to the conference committee members. Key members of that committee need to hear from people around the country that their leadership is needed to alleviate the treatment access crisis. Please take a few minutes this week to make some important phone calls.

What you can do:

There are several phone calls you can make this week to make a difference. A toll-free number is included below, so there is no cost to you. Please make as many of these calls as possible!

1. Call your two U.S. Senators’ D.C. office. Ask to speak to the legislative aide who handles HIV/AIDS and healthcare issues. If your Senator voted in favor of the Schumer Amendment (see list below), thank him/her for his vote and ask that the Senator sign Senator Schumer’s “Dear Colleague” letter.

If your Senator voted against the Schumer amendment, express your disappointment in that vote and let them know that you expect them to sign Senator Schumer’s letter. If you are in one of the ADAP crisis states, and your Senator voted no, ask how he/she can justify turning their back on their constituents who are facing barriers to treatment access.

2. Call your U.S. Representative’s D.C. office and ask to speak to the legislative aide who handles HIV/AIDS and healthcare issues. Identify yourself as a constituent and let them know that you urge your Representative to ask the Labor-HHS appropriations conference committee to support a $215 million increase for the AIDS Drug Assistance Program, the amount needed to alleviate the current fiscal crisis.

3. Call the following key members of the conference committee (toll-free number):

Senator Arlen Specter (R-PA)
Chair of Senate Labor-HHS Appropriations Subcommittee

Senator Tom Harkin (D-IA)
Ranking Member, Senate Labor HHS Appropriations Subcommittee

Representative Ralph Regula (R-OH)
Chair of House Labor-HHS Appropriations Subcommittee

Representative David Obey (D-WI)
Ranking Member, House Labor-HHS Appropriations Subcommittee

Unless you are a constituent, do not ask for a legislative aide, but leave
the following message with the person who answers the phone:

“I am calling to urge Senator/Representative____________ to support adequate
funding for HIV/AIDS care and treatment programs, including a $215 million increase for
the AIDS Drug Assistance Program.
Senator/Representative_______________ is making decisions in conference committee
that affect people with HIV across the country and should support the funding increase
needed to ensure that all Americans have access to lifesaving treatment.”


You can call your Representative and Senators toll-free by calling the Capitol Switchboard at 1-800-648-3516.

You’ll need to know their names and ask to be transferred. Don’t know who your Senators/Representatives are? Go to
Contacting your Congress Member  www.visi.com/juan/congress/

You can also find phone numbers and other contact information on Project Inform's legislative directory
www.projectinform.org/org/FedLegislative/index.html



September 10, 2003:

SCHUMER AMENDMENT FOR MORE DOMESTIC AIDS FUNDING FAILS, BUT OMNIBUS BUDGET
COULD PROVIDE OPPORTUNITY FOR MORE AIDS FUNDING

New York Senator Charles Schumer’s amendment to increase funding for domestic AIDS programs failed today by a vote of 53-44. Several Democrats voted against the bill, and presidential candidates Joe Lieberman and John Edwards didn’t show up to vote for it, despite being present in Washington for a vote on overtime pay important to labor unions.

Senate Republicans have sought flat funding for most domestic AIDS programs, but Schumer has fought back with an amendment that would increase funding for all titles of the Ryan White CARE Act, including $280 million for the hard-pressed ADAP program, which in many states provides the bulk of HIV care for impoverished and poor Americans living with HIV.

An amendment to increase funding for global AIDS programs introduced by Illinois Senator Dick Durbin also failed today, by a vote of 51-43. There is still a possibility that the Senate GOP leadership might take the FY 04 Appropriations bill off the floor and substitute an omnibus budget bill, which could provide an opportunity for adding more AIDS funding in conference. The differences between final funding levels approved by both the House and Senate will be resolved in a conference committee later this month. For more information on federal appropriations advocacy, call Michael Kink at 518-449-4207 or email kink@housingworks.org. The final vote on the Schumer Amendment is included below. 

FINAL VOTE ON SCHUMER AMENDMENT

YEAS -- 44
Akaka (D-HI)
Baucus (D-MT)
Bayh (D-IN)
Biden (D-DE)
Bingaman (D-NM)
Boxer (D-CA)
Breaux (D-LA)
Byrd (D-WV)
Cantwell (D-WA)
Clinton (D-NY)
Corzine (D-NJ)
Daschle (D-SD)
Dayton (D-MN)
DeWine (R-OH)
Dodd (D-CT)
Durbin (D-IL)
Feingold (D-WI)
Feinstein (D-CA)
Graham (D-FL)
Harkin (D-IA)
Hollings (D-SC)
Inouye (D-HI)
Jeffords (I-VT)
Johnson (D-SD)
Kennedy (D-MA)
Kerry (D-MA)
Kohl (D-WI)
Landrieu (D-LA)
Lautenberg (D-NJ)
Leahy (D-VT)
Levin (D-MI)
Lincoln (D-AR)
Mikulski (D-MD)
Murray (D-WA)
Nelson (D-FL)
Nelson (D-NE)
Pryor (D-AR)
Reed (D-RI)
Reid (D-NV)
Rockefeller (D-WV)
Sarbanes (D-MD)
Schumer (D-NY)
Stabenow (D-MI)
Wyden (D-OR)

NAYs ---53
Alexander (R-TN)
Allard (R-CO)
Allen (R-VA)
Bennett (R-UT)
Bond (R-MO)
Brownback (R-KS)
Bunning (R-KY)
Burns (R-MT)
Campbell (R-CO)
Carper (D-DE)
Chafee (R-RI)
Chambliss (R-GA)
Cochran (R-MS)
Coleman (R-MN)
Collins (R-ME)
Conrad (D-ND)
Cornyn (R-TX)
Craig (R-ID)
Crapo (R-ID)
Dole (R-NC)
Domenici (R-NM)
Dorgan (D-ND)
Ensign (R-NV)
Enzi (R-WY)
Fitzgerald (R-IL)
Frist (R-TN)
Graham (R-SC)
Grassley (R-IA)
Gregg (R-NH)
Hagel (R-NE)
Hatch (R-UT)
Hutchison (R-TX)
Inhofe (R-OK)
Kyl (R-AZ)
Lott (R-MS)
Lugar (R-IN)
McCain (R-AZ)
McConnell (R-KY)
Miller (D-GA)
Murkowski (R-AK)
Nickles (R-OK)
Roberts (R-KS)
Santorum (R-PA)
Sessions (R-AL)
Shelby (R-AL)
Snowe (R-ME)
Specter (R-PA)
Stevens (R-AK)
Sununu (R-NH)
Talent (R-MO)
Thomas (R-WY)
Voinovich (R-OH)
Warner (R-VA)

Not Voting - 3

Edwards (D-NC)
Lieberman (D-CT)
Smith (R-OR)

SAVE ADAP UPDATE

Schumer Amendment on ADAP/Ryan White CARE Act To Be Introduced This Week

Faxes and Calls Still Needed!

September 5, 2004

Thank you to everyone who has called, written, and/or met with your U.S. Senators and urged them to support Senator Schumer’s amendment to increase funding for the AIDS Drug Assistance Program (ADAP) and other Ryan White CARE Act programs. From what we’ve been hearing from Senate offices, the grassroots is weighing in loud and clear on this issue.

We wanted to provide a brief update on the situation. The amendment has been written and will be introduced during the week of September 8th. It asks for the community’s funding request for all Titles of the CARE Act, including the AIDS Drug Assistance Program. Senator Schumer’s office is looking for co-sponsors for the amendment and for Senators who are willing to speak on its behalf on the Senate floor. Republican support for this amendment is particularly important.

There are still ways that you can help fight for the passage of this amendment:

1. If you haven’t yet called your two U.S. Senators’ DC offices, please do so on Monday, September 8th and throughout the week. Below is a toll-free number to reach them and a sample message. We will continue to post on this site updates on any progress.

2. If you have access to a FAX machine, you can write a short letter in support of the Schumer amendment and fax it to your two U.S. Senators’ offices. These will provide a hard copy follow-up to your phone call and will further demonstrate strong support for the amendment. You can use the sample letter below to help craft your message. Letters are needed as soon as possible, and preferably by end of day Monday, Sept. 8th.

3. Finally, you can ask others to call and fax their Senators as well. Please consider asking at least two people you know to take action on this issue. The more calls and letters that are received by our Senators, the better the chance that they will vote for the amendment.

Thank you again for your efforts! Together we can make a difference and help increase access to care and treatment for people with HIV/AIDS!

You can call your Senators toll-free by calling the Capitol Switchboard at 1-800-648-3516. You’ll need to know the names of your Senators and ask to be transferred. Don’t know who your Senators are? Go to www.vote-smart.org

Sample letter: (Letters should be FAXed. You can find most fax numbers for Senators on Project Inform’s online legislative directory,

The Honorable_________________
U.S. Senate
Washington, DC 20510

Dear Senator________________:

I strongly urge you to support Senator Schumer’s amendment to the Labor-HHS
Appropriations bill that will increase funding for the Ryan White CARE Act.

This amendment will provide badly needed increases for the AIDS Drug Assistance
Program and other vital HIV/AIDS programs.

(Insert personal statement here. If you or someone you care about depends on
ADAP and/or other Ryan White CARE Act programs, talk a little bit about the
importance of the program. If there is a waiting list or other restriction to
treatment access in your state, mention that here. Otherwise, write a few sentences
about why you care about this issue)
.

The increases for these programs offered by the House of Representatives are
extremely inadequate. The Schumer amendment offers an opportunity for
Congress to demonstrate real leadership on behalf of people with HIV/AIDS. Please do
everything in your power to make sure it passes the Senate. Thank you for your
consideration.

Sincerely,

Your name

Your complete home address

For more information:

The Save ADAP Committee is a Working Group of the AIDS Treatment Activists Coalition (ATAC), a national coalition of AIDS treatment activists and policy advocates. Working in conjunction with ADAP clients and service providers on the grassroots level, Save ADAP aims to ensure adequate funding for the AIDS Drug Assistance Program. If you would like to join Save ADAP, please send an e-mail to Ryan Clary at RClary@Projectinform.org. For more information about ATAC, go to www.atac-usa.org

MORE LINKS BELOW

Date

The Honorable_________________
U.S. Senate
Washington, DC 20510

Dear Senator________________,

I urge you to support a $283 million increase for the AIDS Drug Assistance
Program (ADAP) for Fiscal Year 2004, and the highest possible funding for all
HIV/AIDS programs. ADAP, funded through Title II of the Ryan White CARE Act,
provides access to treatment for low-income people living with HIV/AIDS who are
uninsured or without adequate prescription drug coverage. Currently, many state
ADAPs are in a financial crisis and have been forced to implement limits to
treatment access, including waiting lists.

[Insert personal statement here. If you or someone you care about depends on
ADAP, talk a little bit about the importance of the program. If there is a
waiting list or other restriction to treatment access in your state, mention that
here. Otherwise, write a few sentences about why you care about this issue]


Anti-HIV drugs have been successful in dropping the death rate from AIDS in
the United States by over two-thirds since 1996. AIDS policy experts have
determined that a $283 million increase for ADAP is needed for Fiscal Year 2004 to
keep the program stable. Please do everything in your power to ensure that all
people living with HIV/AIDS have access to treatment by supporting this badly
needed increase in funding. Thank you.

Sincerely,

Your name
Your complete home address


Contacting your Congress Member  www.visi.com/juan/congress/

You can also find phone numbers and other contact information on Project Inform's legislative directory
www.projectinform.org/org/FedLegislative/index.html

Please contact your Senators -- prior to Labor, HSS Appropriations in the Senate.
Senate action is now expected in the first week of September.



download White Paper
The History and Status of the ADAP Funding Crisis
August 2003  (pdf)

ADAP Funding Watch
From the NATIONAL ALLIANCE OF STATE AND TERRITORIAL AIDS DIRECTORS 6/23/2003

AIDS Drug Assistance Program (ADAPs) provide life-saving HIV treatments to low income, uninsured individuals living with HIV/AIDS in all 50 states, the District of Columbia, the Commonwealth of Puerto Rico, the U.S. Virgin Islands, three U.S. Pacific Territories (Guam, the Commonwealth of the Northern Mariana Islands, and American Samoa) and one Associated Jurisdiction (the Republic of the Marshall Islands). Federal funding for ADAPs in FY2002 and FY2003 has been insufficient to meet the needs of those eligible and has lead to ADAP access restrictions. Fifteen ADAPs have closed enrollment to new clients or limited access to antiretroviral (ARV) and other treatments. Seven states anticipate the need to implement program restrictions during FY2003 which began April 1, 2003.

ADAPs with waiting lists and/or access restrictions as of June 2003

Alabama: capped enrollment (90 on waiting list)
Alaska: capped enrollment
Arkansas: capped enrollment
Colorado: cap enrollmentand reduce formulary (12 on waiting list)
Idaho: capped enrollment
Kentucky: capped enrollment (130 on waiting list)
Nebraska: capped enrollment (30 on waiting list) and reduced formulary
New York: reduced formulary; mandatory generics; prescription limits
North Carolina: capped enrollment
Oklahoma: reduced formulary and annual expenditure cap
Oregon: capped enrollment; reduced formulary; lowered financial eligibility (220 on waiting list)
South Dakota: capped enrollment (49 on waiting list)
U.S. Virgin Islands: lowered financial eligibility
Washington: lowered financial eligibility criteria; reduced formulary; imposed cost-sharing
West Virginia: capped enrollment (10 on waiting list)

ADAPs anticipating new/additional restrictions in FY2003

Indiana
Montana
New Hampshire
Oklahoma
Texas
Washington

Note: If adequate resources are NOT provided for the AIDS Drug Assistance Program for FY04 the above described lak of access to AIDS treatment situation in the United States will grow worse every month from now until March 31st, 2005.     

see more information AIDS Treatment Data Network



Recent News: Three People Just Died on ADAP Waiting Lists!
August 28, 2003 THE CHARLESTON GAZETTE – Charleston, West Virginia  

West Virginia's AIDS Drug Assistance Program stopped taking new patients almost seven months ago. Since then, three patients have died waiting to get the free HIV/AIDS drugs provided by the federally funded ADAP, a drug program for low-income patients who do not qualify for Medicaid or other drug programs. Another 14 patients are still waiting to be enrolled. "People are now starting to die while they're on the waiting list," said Dr. Faisal Khan, director of West Virginia's HIV/AIDS/STD program. "It is a crisis that will continue." read more


August 4, 2003



The address for this page has changed

You should be re-directed automatically soon.
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see also .. A D A P >> National AIDS Drug Assistance Program State Listings Index

 



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